"You can get busy living..."
Betsy's recent entry makes reference to a line that reads, in part, "You can get busy living...".
This is in concert with the expression in my recent blog entry, "Behave like...act like".
Betsy and I are "acting" like we are cured of Stage IV non-Hodgkin's lymphoma. In other words, we are "busy living".
We are busy in our zealous advocacy of radioimmunotherapy (RIT) as an important treatment modality for so many lymphoma patients. We are busy because we are aware that medical oncologists are not referrring many appropriate patients for RIT.
We shall not tire; we shall not rest in our effort.
Mort
Comments
THE DRUG ZEVALIN AND RADIOMMUNOTHERAPY.
AUGUST 2005 I WAS TOLD I HAD NON-HODGKINS LYMPHOMA STAGE III
AFTER FOUR TREATMENTS OF RITUXAN AND A YEAR ON A CLINICAL TRIAL THE TUMORS INCREASED AND IT WAS LEARNED I WAS GETTING A VACCINE AND NOT THE PLACEBO IN THE CLINICAL TRIAL SO I WAS BACK TO GROUND ZERO AGAIN.
MY ONTOLOGISTS WANTED ME TO AGREE AND SUGGESTED I TAKE CHOP THERAPY BUT I REFUSE THAT TREATMENT AND THINGS AS FAR AS MY HEALTH WAS NOT LOOKING TO GOOD. I HAD SEEN SEVERAL OTHER PATIENTS WHILE AT THE INFUSION CENTER AT MOFFITT CANCER CENTER TAKING DIFFERENT TYPES OF CHEMOTHERAPY AND I WAS NOT GOING TO ONE OF THEM.
AFTER ATTENDING A SEMINAR IN HOLLYWOOD FLA. AND LEARNING ABOUT RIT.. AND MEETING DR. DIAMOND AND BETSY I PURSUED THE TREATMENT WITH MY DOCTORS.
DECEMBER 7, 2006 I RECEIVED THE TREATMENT ZEVALIN
APRIL 12 2007 THE DR. CAME IN AFTER I HAD THE LABS AND ASKED HOW I WAS FEELING. I TOLD HIM FELT GOOD AND WAS GETTING STRONGER, I AM FEELING MORE LIKE MYSELF THEN I HAVE THE PAST TWO YEARS . HE SAID YOU SHOULD BE FEELING GOOD.. �ALL YOUR LABS ARE NORMAL AND GOOD READINGS . IN JULY 06 2006 WHEN YOU HAD THE PET SCANS YOU LIT UP LIKE A CHRISTMAS TREE AND COMPARED TO THE MARCH 2007 SCANS AFTER THE ZEVLIN ON DEC. 7, 2006. ALL THE CANCER IN YOU PELVIS IS GONE. THE MASS BEHIND YOUR STOMACH HAS ABOUT A 40 TO 50% DECREASE IN SIZE.�
STATED I WILL GET SCANS IN LATE MAY AND REVIEW IN JUNE. SAID HE FELT THE ZEVLIN WILL STILL BE WORKING ALONG WITH A STRONGER IMMUNE SYSTEM FOR THE NEXT TWO MONTHS AND SHOULD SEE MORE OF A DECREASE IN THE SIZE OF THE TUMORS THEN..I ASKED HIM ABOUT A POSSIBLE CURE OF THE DISEASE AND HE SAID HE FELT I WAS ON THE ROAD TO REMISSION .
MADE ME FEEL GOOD ABOUT THE SUCCESS .
THANK YOU FOR ALL THE INFORMATION AND AS YOU OFTEN SAY.
WE MUST EDUCATE OURSELVES AND BE OUR OWN ADVOCATES.
JIM
Posted by: J.D. RIGGLEMAN | April 14, 2007 3:51 AM