Information Sources
For those of you looking for in-depth information, there is a wonderful website at www.lymphomation.org. It is run by a man named Karl Schwartz who is president of Patients Against Lymphoma, an advocacy group which provides patient perspectives, education and support.
Karl regularly updates the site with the results of new trials and studies and just recently posted an article about a company which has developed a diagnostic test to help doctors predict whether a patient will respond to Rituxan.
He also runs a Yahoo group which I recently learned about. If you go to yahoo, look under Groups and then type in lymphoma. There are several sub-groups for differents types of lymphoma. You will have to register, which I did a couple of weeks ago, and I have been amazed by the emails that have come to me about a variety of issues and types of lymphoma. The number of messages is not overwhelming, but the questions and answers are very insightful.
Information empowers us to make informed treatment decisions. It enables us to captain our own ships as we navigate the troubled waters of NHL, but it is important to find accurate information. These two sources may be helpful.
Betsy